Often times receiving a Down syndrome diagnosis can be a scary, lonely time. We hope to be able to open the discussion about the positive aspects of Down syndrome and provide new families with a support group right from the beginning.
We are in the process of researching new and relevant information that can be provided to families who receive a Down syndrome diagnosis. Information that can be received right from the diagnosis point at the doctors office.
It may include literature such as brochures, pamphlets, business cards and contact information for next steps for families after receiving a diagnosis or potential diagnosis of Down syndrome.
For more information on giving a Down syndrome diagnosis please visit the Down Syndrome Diagnosis Network or view our resources below. If you have any questions please don't hesitate to contact us here.
How We Support Families
Children with Down syndrome can be born with various medical issues that require surgery or intervention of some kind. This is a huge emotional and financial burden on the families involved. We offer two options to assist families in need:
The Chasing Hazel Foundation provides financial support to families who need assistance with certain Down syndrome-related expenses. Funds are reimbursed. Please see the attached application for instructions and eligibility requirements. For more information or to apply contact us here.
We provide health related supportive services or products which may include providing extra comfort items to cope with hospitalization or a health condition associated with Down syndrome. It may also include reimbursement of extensive costs of travel. For more information or to apply for yourself or refer someone you know, contact us here.
There are a number of resources (most local) for individuals with Down syndrome, and their loved ones. If we missed one of your favourites please email us to let us know!
All Level CrossFit – Provides the Adaptive Athlete class where everyone belongs. It models inclusion, acceptance, and partnership for people of ALL abilities. The goal is to highlight each athlete’s abilities, and how working as a team can be beneficial to achieving our own personal fitness goals.
Roots 2 Wings – Providing youth and young adults living with a disability the opportunities to grow and develop skills to enhance their independence, social skills, and quality of life.
Children’s First Windsor – Partners with families and the community to provide individualized support for children (birth to 6 years) with developmental and/or mental health challenges, helping them reach their full potential through early identification, education, and clinical intervention.
Community Living – Dedicated to supporting people who have an intellectual disability and their families as they pursue possibilities, make choices and achieve the life they want. There are 2 branches here locally.
Up About Down – An organization of people committed to enhancing the quality of life for individuals with Down syndrome and their families.
Family Respite – Works in partnership with families who have children with disabilities. We coordinate support and provide short breaks that strengthen families and contribute to children having meaningful lives in their community.
John McGivney Children’s Centre – Provides family-centered holistic care to the community, enriching the lives of children and youth with special needs by helping them reach their full potential.
The Canadian Down Syndrome Society – Works to advocate for and support people with Down syndrome by providing information, resources, and assistance, for parents and families of children with Down syndrome, professionals, and self-advocates.
Group Hug Apparel – Andrew Banar, a local Windsorite and self advocate, owns his own t-shirt and apparel company, where he designs his own brand.
St. Clair College – Offers programs such as the Early Childhood Education, Concurrent Education and various other support staff diplomas. They also, work closely with our foundation to offer our Down syndrome community the “Off to College” Playgroup.
In Honour Of The Ones We Love – To raise awareness and ensure our community has access to the best medical treatments with state-of-the art facilities, specializing in enhancing cancer patient care.
Ruby’s Rainbow – Grant scholarships to adults with Down syndrome who are seeking post-secondary education, enrichment or vocational classes, helping them achieve their dreams of higher education while spreading awareness of their capabilities.
Down Syndrome Diagnosis Network – Supports parents who have recently received a diagnosis for their child or unborn baby by connecting them to other families touched by Down syndrome